CF clinic–July 2012

We had our quarterly clinic for the kiddos two weeks ago. 

Ironically, both kids have been super healthy since February and since clinic BOTH have been sick!

Ellie:

At exactly 5 1/2 years old

weight- 46 lbs (68.7%)

height- 3’8.92” (73.79%)

sputum culture- MFSA

The most exciting news for Ellie is that she will start big girl PFT’s at our next clinic!!  I am so excited to have a baseline for her!

Our doctor actually co-wrote a workbook for kiddos about CF and I will be using it next year as the health portion of our homeschool curriculum.  We also got a very cool picture book at this clinic.  Ellie knows a little about CF.  She knows how important it is to be conscious about germs, but this book was very cool because it went more in depth about the importance of treatments and our lungs, etc. 

Cullen:

at exactly 2 years old

weight- 27lbs (32.23%)

height- 2’10.02” (31.55%)

sputum culture- para influenza and achromobacter

(for my own personal info I like to compare clinic visits)

No new info from clinic.  Our little man is super sick right now and we are just trying to get him some relief from this cough and congestion.  A sick baby makes a tired baby ~ and one tired momma!

So sad that our baby knows how to take his own temperature.  It’s also sad that I let him play with the thermometer the other morning to avoid hearing him scream and now it is lost! (like really and truly lost ~ we have searched the entire house and it has just disappeared) Nothing like a sick baby and no way to take a temp.  On my next trip to CVS I will be investing in a new one.

Ellie and Cullen,

You are both very blessed to have such a wonderful CF clinic right down the street.  I love how it is just a routine part of our life now.  Cullen is actually wearing his mask without argument and Ellie actually got through her throat swab without anyone holding her down to the table!  We consider that a successful visit! (and we may or may not have bribed both of our children with a trip to the toy store if they had a great visit…)  Daddy and I are so proud of both of you.